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Su Gorman and Steve Dymond helped to expose an NHS scandal - but they died without seeing justice.
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More than 12,000 people asked for tests in England after the BBC found 1,700 cases are undiagnosed.
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A caretaker from Brixham says it is "probably the worst ailment" he has had in his adult life.
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The health secretary says renewed negotiations should take place away from deadlines and social media.
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Leeds General Infirmary among NHS hospitals criticised for storing bodies at unsuitable temperatures.